Starred review from January 6, 2025
Ichikawa’s provocative debut chronicles a disabled woman’s sexual awakening. Shaka, a Japanese woman who lives with myotubular myopathy, a genetic disease whose symptoms include difficulty breathing and muscle weakness, is independently wealthy thanks to an inheritance from her parents. She spends her days taking online university courses and writing pornographic stories for money, which she sends to food banks and shelters for homeless young girls. In between regular bodily maintenance, such as using her ventilator to remove mucus from her windpipe, she posts risqué messages on social media: “I’d like to know what it’s like to have an abortion.” When Tanaka, a male nurse who works at the group home where she lives, offers to have sex with Shaka for money, she accepts, and after consummating their deal, she embarks on a series of escapades that mirror her written fantasies. Ichikawa, who lives with congenital myopathy herself, exhibits an undeniable talent with this character study, which doubles as a damning critique of Japanese cultural norms. Japan “works on the understanding that disabled people don’t exist within society,” Shaka narrates. “Able-bodied Japanese people have likely never even imagined a hunchbacked monster struggling to read a physical book.” Throughout, Shaka’s desire and wit make her a deeply human character (“Yeah, that felt—good,” she writes after hitting the ventilator). This is impossible to forget.
Starred review from February 1, 2025
DEBUTIchikawa's bestselling, award-winning debut novel was first published in Japan in 2023. Now translated into English, it presents readers with a glimpse into the life of Shaka, a middle-aged woman diagnosed with myotubular myopathy, a congenital muscular disorder. She lives in a group home, where she has caregivers, uses an electric wheelchair, and primarily communicates through texts and gestures. An only child, Shaka received a substantial inheritance upon the death of her parents and has no financial concerns, but she publishes successful erotic ebooks and donates her earnings to shelters and food banks. Using social media as an outlet, she reveals her desire to become pregnant, and the opportunity presents itself through a caregiver. With a wry sense of humor, Ichikawa successfully uses Shaka's story and vivid imagination to bring the lives of people with disabilities to the forefront (Ichikawa herself has congenital myopathy), while taking a no-holds-barred look at sexuality and desire. VERDICT Insightful, bold, and provocative. An easy read but an unpredictable story that will provide ample material for book group discussions. Ichikawa's excellent work is wholly relatable for anyone who has ever felt out of place in society and longed to fit in.--Shirley Quan
Copyright 2025 Library Journal, LLC Used with permission.
February 1, 2025
Ichikawa's debut novel, brilliantly translated by Polly Barton, is a splendid example of the innovative feminist literature coming out of Japan today. Narrator Shaka Izawa has myotubular myopathy, which has left her heart and lungs compromised such that she requires a tracheostomy and must remain hooked up to a ventilator to breathe. She lives in a group home. Undaunted by her disability, Shaka maintains a virtual presence via online education, freelance writing, and a ubiquitous Twitter account. Her writing is erotica, journalism, and fiction, and she is unabashedly unafraid of posting controversial tweets on women's concerns. Ichikawa draws on the history of disability and Japanese literature, commenting on topics from women's reproductive rights to publishing tactics that exclude e-book formats, often the only accessible form for disabled readers. Ichikawa experiments with genre, narration, and storytelling, and in a masterpiece of an ending, she leaves the reader with questions upon questions. Probing her novel's various themes, Ichikawa asks us to see disability with more equitable eyes.
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